LEMS, Exercise, and Me
When first coming to terms with a Lambert-Eaton myasthenic syndrome (LEMS) diagnosis, it’s easy to focus on the new limitations imposed on you. Concerns about exercise and physical activities come to mind. Although you may…
My Disease Doesn’t Define Me
Being diagnosed with Lambert-Eaton myasthenic syndrome (LEMS) can be overwhelming, especially as abilities need to be reassessed and new realities have to be absorbed. But a LEMS diagnosis does not define a person. One of…
Balancing LEMS Self-Care: The Gift I Give Myself
Balancing life with Lambert-Eaton myasthenic syndrome (LEMS) management can already be a challenge without adding the stresses of holiday events, traveling, and end-of-year commitments. It’s important to maintain self-care practices during this busy season, so…
What I Wish Someone Had Told Me
I knew I would be fatigued, but I had read that I would be able to continue with my activities after a short rest. What I later learned is that after that short rest, the…
Tips for Traveling with LEMS
Bustling airports and busy highways are hallmarks of the holiday season. But when you have LEMS, travel can be intimidating. We asked Ambassador Jamie to share her best tips and tricks for making your next…