LEMS, Exercise, and Me
When first coming to terms with a Lambert-Eaton myasthenic syndrome (LEMS) diagnosis, it’s easy to focus on the new limitations imposed on you. Concerns about exercise and physical activities come to mind. Although you may…
My Disease Doesn’t Define Me
Being diagnosed with Lambert-Eaton myasthenic syndrome (LEMS) can be overwhelming, especially as abilities need to be reassessed and new realities have to be absorbed. But a LEMS diagnosis does not define a person. One of…
Tips for Traveling with LEMS
Bustling airports and busy highways are hallmarks of the holiday season. But when you have LEMS, travel can be intimidating. We asked Ambassador Jamie to share her best tips and tricks for making your next…
Planning for the Future
“No hard feelings if you need to walk away,” I said to my partner. This wasn’t an easy conversation to have, but I was being truly honest. See, at the time, I had just been…
How I Make Life with LEMS Work for Me
Those who have been affected by LEMS know that life doesn’t always turn out the way they thought it would. Being diagnosed with a rare disease can alter future goals, hobbies, and relationships. But even…