Skip to content
Blog

LEMS, Exercise, and Me

When first coming to terms with a Lambert-Eaton myasthenic syndrome (LEMS) diagnosis, it’s easy to focus on the new limitations imposed on you. Concerns about exercise and physical activities come to mind. Although you may…

Blog

My Disease Doesn’t Define Me

Being diagnosed with Lambert-Eaton myasthenic syndrome (LEMS) can be overwhelming, especially as abilities need to be reassessed and new realities have to be absorbed. But a LEMS diagnosis does not define a person. One of…

Blog

Tips for Traveling with LEMS

Bustling airports and busy highways are hallmarks of the holiday season. But when you have LEMS, travel can be intimidating. We asked Ambassador Jamie to share her best tips and tricks for making your next…

Blog

Planning for the Future

“No hard feelings if you need to walk away,” I said to my partner. This wasn’t an easy conversation to have, but I was being truly honest. See, at the time, I had just been…

Blog

How I Make Life with LEMS Work for Me

Those who have been affected by LEMS know that life doesn’t always turn out the way they thought it would. Being diagnosed with a rare disease can alter future goals, hobbies, and relationships. But even…