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Planning for the Future

“No hard feelings if you need to walk away,” I said to my partner. This wasn’t an easy conversation to have, but I was being truly honest. See, at the time, I had just been…

How I Make Life with LEMS Work for Me

Those who have been affected by LEMS know that life doesn’t always turn out the way they thought it would. Being diagnosed with a rare disease can alter future goals, hobbies, and relationships. But even…

What I Know About Living with LEMS: Then and Now

Getting diagnosed with a rare, incurable illness like LEMS can be scary & confusing. Read about the 4 things a LEMS ambassador has learned about living with LEMS.