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Finding a Specialist

Finding the right doctor is the key to unlocking your diagnosis

Your primary care physician is the ideal healthcare partner to help you maintain your general health. Their role is to provide exams, treat minor illnesses, and refer you to specialists when severe illness or symptoms appear.

Symptoms that include debilitating muscle weakness require the expertise of a physician trained in neuromuscular medicine—the study of nerves, muscles, and how they interact.

Specialists who can help

Specialists who can diagnose and treat Lambert-Eaton myasthenic syndrome (LEMS)

Neurologists

Physicians who specialize in conditions that affect the nervous system, including the brain, the spinal cord, and all the nerves in the body.

Neuromuscular specialists

Physicians who specialize in conditions that affect the neuromuscular system, including disorders of the neuromuscular junction.

Physiatrists

Physicians who specialize in physical medicine and the rehabilitation of medical conditions affecting the brain, spinal cord, bones, joints, nerves, and muscles.

Search for LEMS physicians nearest to you using just your ZIP code!

Find Physicians

Preparing to talk with a LEMS specialist

Before meeting with the doctor, write down notes that include a brief but thorough description of your current health status. Be sure to include:

Specific information about your symptoms and how they affect your daily activities

A timeline of your illness: when symptoms first appeared, how they progressed, and whether they’ve fluctuated, gotten better, or gotten worse

Details about previous treatments you’ve received or used, including prescription drugs, over-the-counter remedies, and any physical therapy or rehab

 

You should also prepare a list of any questions you may have about the tests or treatments that your doctor may recommend. The next section offers information that can help you have a productive conversation.

I’m in a place now where my doctors communicate with each other.

Tescha talks about the importance of coordinated care among professionals on her healthcare team.

In this video, Tescha describes the benefits of getting all her specialists on the same page when it comes to her treatment.

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More content is on the way for LEMS Aware, including video stories with real patients who are living and thriving with LEMS. Sign up to stay informed about new additions to the website as well as other resources that become available.

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Next: Testing and Treating LEMS >